All of my past and future blogs are now posted on my new website Born at the Right Time.
In 1985 Marty McFly hit the big screen for the first time. Back to the Future was epic, with its DeLorean time travel machine, flux capacitor and crazy Doc screeching, "1.21 Gigawatts!". Marty finds himself in 1955 and has to get back to the future whilst ensuring his parents still fall in love.
The whole
concept of the film pivots around 'What if?'
What if
his mum falls for him instead of his dad and never makes it to the Enchantment
Under the Sea Dance? What if they never kiss and Marty and his siblings never
exist?
Everyday
life is full of 'what ifs’. Most of them are
inconsequential and decisions are made without a fanfare. At other times,
however, what could have happened hangs above us like large black clouds
changing the whole climate and weather system of our lives.
'What if
she hadn't got on that plane?'
'What if
he had left in the car ten minutes later?'
'What if
I had gone to hospital the first time I noticed my baby not moving?'
One
minute and one decision can lead to a whole stream of 'what ifs' that entice us
down a road of expectation and assumption.
In the
days and weeks after my son's MRI scan confirmed the dramatic and
widespread damage to his brain, my mind and emotions were gripped with what
could have been. If he had been born a day or two earlier would he have been
born without complication, a fit and well baby?
When he
was born it was as though the long film reel of the life I had been dreaming and
anticipating was abruptly sheared by a pair of large scissors. Instead of my
future being neatly rolled up just waiting to unfurl, the story of my
life dangled precariously in the air. I simply couldn't see the future before
me; nothing remained the same.
I had to
relearn living with a new perspective.
Firstly I
had to mourn. I grieved the baby I had hoped and prayed for. It is absolutely
right to mourn the loss of a person, relationship or situation. It can take
months, years or a lifetime of living with grief; often it leaves us changed.
The
forecast of my life, however, began changing when I stopped dwelling on the
alternate universe that only ever happened in my mind. I came to realise I had
stopped mourning what had happened
and was instead mourning what hadn't happened.
I was mourning something that was never mine in the first place; something that
only ever occurred in my imagination.
My
husband’s perspective was very
different; he asserted that there was never a world where our son wasn't born
with severe brain damage. He reminded me that along with all of my brighter,
more glossy, scenarios, there were just as many worse options.
It is
only fairly recently that I could say both my son's were 'Born at the Right
Time'. That doesn't mean what happened was 'right', nor does it mean it doesn't
make me sad or at times is incredibly difficult, rather it means that I
changed.
My
perspective changed.
I kind of
see it a lot like prayer. I don't see prayer as me cajoling, haranguing or
persuading God to make my life and world a better place. I see praying as me
trying to hear and see what God is doing in the world around me, and joining
in. It's about me becoming the hands, words and love of God with whoever and
wherever I am.
I came to
seeing it as 'right' because I allowed my perspective and view to come in line
with my reality. I made a decision to trust God with not only the good in my
life but the pain and mess also.
What I
found was, when I learnt to live in the reality of today, and not the
expectations of my imagination, I had the potential to be healed.
There is
a sign on the side of a building I pass on the drive to Great Ormond Street
Hospital. It says,
"Sorry the lifestyle you ordered is currently out of stock."
When I
realised the lifestyle I had ordered wasn't in stock I had to make a choice.
I either sit in the shop moaned, groaned and stamped my feet, or I look around at
the different, yet beautiful things in stock. I could learn to "Love the skies
I'm under."* For me it has been a vital step in acceptance.
*Mumford and Sons song "Hopeless
Wanderer"
7 comments:
This is my fav of your posts so far! You have made it so clear and it is so true...our expectations and perspective about a situation determine our emotional response. Im really enjoying your blog. You respond to your situation with honesty and love. Looking forward to the next post!
Thanks Janice, I've always been one for imagining and re-imaging what life was going to be like next. I'm not sure I like why I now live more in today but I do love being more mindful about the people, places and experiences I'm actually having rather than what I think may happen. Love and prayers to you and yours x
What a journey you are on . I look forward to reading your blogs . Lots of love mag and joe xxx
Another great blog. As I've said before, what is so authentic about your writing is that you walk the walk, and the things you talk about are based on tough experiences. There are no platitudes here. I wondered if we're allowed to post questions or thoughts that you might develop further in future blogs?!! I'll await a response before posting any! Lots of love, and keep writing. A xxx
Thanks Alex. It would be great if others shared their thoughts and we could engage in a conversation about how these things affect how we live or try to live
And of course future blog ideas are more than welcome..... X
i too often wonder what if
november the 8th 2005 i am laying on a bed in st thomass hospital london
i hear sounds of a babies heart beat drumming along sounds amazing but suddenly the beat starts to slow down not knowing at that time it was joshs heart going into a arrest and the start of a journey that has had a massive impact on our family i have never told anyone about this but i lived with the fact that if i had pressed the emergency button when i first heard that the heart beat had slowed down what if what if i just go through this every day and night josh is a wonderful young lad with many many complex conditions and in the net ten days his life could be transformed with continuos care i just hope and pray he gets some justice i will end this wee note by saying what if eh
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